The Driving “Fore” a Cure for PH Golf Tournament is held annually to raise funds and awareness to support PH research and to help find a cure.
The inspiration for this golf tournament is our 13 year old son Jackson, who was diagnosed in August of 2012 with Pulmonary Hypertension (PH). PH is a chronic, incurable, progressive, and life-threatening lung disease that creates narrowing of the blood vessels in the lungs which causes additional
strain on the right side of the heart. If left untreated, PH can lead to failure of the right side of the heart. Within 48 hours of Jackson being diagnosed, we were told he wouldn’t survive the disease and that he would eventually need a lung or a heart & lung transplant.
PH is often misdiagnosed as less severe conditions, such as asthma, due to the hidden/similar symptoms of PH. Because it is often misdiagnosed, the disease continues to progress, and often patients are not diagnosed until it is too late. Primary Pulmonary Hypertension (PPH) or Idiopathic Pulmonary Arterial Hypertension (IPAH — what Jackson has) is so rare in children that only 1 in 1,000,000 are diagnosed with the disease. Because of it being so rare, even doctors do not understand the disease and treatments in its entirety.
After Jackson was formally diagnosed, we began to speak with specialists at Duke Hospital and Boston Children’s Hospital to create a plan on how to attack this disease. Fortunately, he was diagnosed early enough where treatment was still an option. There have been some significant advancements on treatments of Pulmonary Hypertension over the last 10+ years, however, there is only one approved treatment for children with PH and there is still no cure.
The 11th Annual Driving “Fore” a Cure for PH golf tournament will be held on November 1st, 2024 at Riverwood Golf Course in Clayton, NC. Our goal is to raise $75,000 for research. 100% of the proceeds will go towards research to help find a cure for this disease. There will be great food, gifts, silent auction, and of course a great day of golf. Registration includes golf, tee gifts, lunch, dinner, and a golf shirt.
REGISTRATION:
Individual Registration - $250
Team of 4 Registration - $1000
SCHEDULE OF EVENTS:
Registration: 8:30 a.m.– 9:30 a.m.
Golf Tournament: 10:00 a.m. – 3:00 p.m.
Dinner & Guest Speaker: 3:00 p.m. – 3:30 p.m.
Silent Auction & Awards Ceremony: 3:30 p.m. – 4:00 p.m.
Click here to register online.
To become a sponsor email us at: MattW@EnoCompany.com/Jayna@drivingforeacureforph.com or provide information as noted in the sponsorship opportunities. Thank you for your support, we are excited to help find a cure for PH!
